{"id":45,"date":"2020-03-25T22:01:33","date_gmt":"2020-03-25T21:01:33","guid":{"rendered":"http:\/\/www.tadytomamrad.cz\/?page_id=45"},"modified":"2020-04-05T11:10:12","modified_gmt":"2020-04-05T09:10:12","slug":"jaky-problem-resime","status":"publish","type":"page","link":"https:\/\/www.tadytomamrad.eu\/?page_id=45","title":{"rendered":"Jak\u00fd probl\u00e9m \u0159e\u0161\u00edme"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">Lid\u00e9, kte\u0159\u00ed z\u00edskali diagn\u00f3zu po roce 1994, jsou dnes mlad\u00ed dosp\u011bl\u00ed s vysokou m\u00edrou podpory, ale bez s\u00edt\u011b slu\u017eeb.  V\u011bt\u0161ina registrovan\u00fdch poskytovatel\u016f soci\u00e1ln\u00edch a zdravotn\u00edch slu\u017eeb nen\u00ed schopna se o lidi s&nbsp;autismem postarat. Rodin\u00e1m tak nezb\u00fdv\u00e1 ne\u017e se o sv\u00e9 bl\u00edzk\u00e9 s autismem pln\u011b postarat sami.  Pomoci jim mohou pouze omezen\u00e9 vzd\u011bl\u00e1vac\u00ed a ter\u00e9nn\u00ed slu\u017eby, kter\u00e9 nejsou v\u0161ude dostupn\u00e9.  S postupuj\u00edc\u00edm v\u011bkem je pak pro st\u00e1rnouc\u00ed rodi\u010de st\u00e1le t\u011b\u017e\u0161\u00ed zajistit pot\u0159ebnou celodenn\u00ed p\u00e9\u010di a podporu i nad\u00e1le, celo\u017eivotn\u011b, vlastn\u011b do\u017eivotn\u011b.  V\u00fdhled, \u017ee <strong>neexistuje nikdo, kdo by p\u0159evzal t\u00edhu p\u00e9\u010de po jejich smrti<\/strong>, je pro v\u0161echny rodi\u010de velmi stresuj\u00edc\u00ed. Perspektiva, \u017ee jejich d\u011bti skon\u010d\u00ed ve \u0161patn\u00e9m stavu v psychiatrick\u00e9 l\u00e9\u010debn\u011b nebo velk\u00fdch \u00fastavech, kter\u00e9 jim nejsou schopny poskytnout adekv\u00e1tn\u00ed p\u00e9\u010di a podporu je pro mnoh\u00e9 zdrcuj\u00edc\u00ed. <\/p>\n\n\n\n<div class=\"wp-block-image\"><figure class=\"aligncenter size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"682\" src=\"http:\/\/www.tadytomamrad.cz\/wp-content\/uploads\/2020\/03\/autismus-rodice-1024x682.jpg\" alt=\"\" class=\"wp-image-103\" srcset=\"https:\/\/www.tadytomamrad.eu\/wp-content\/uploads\/2020\/03\/autismus-rodice-1024x682.jpg 1024w, https:\/\/www.tadytomamrad.eu\/wp-content\/uploads\/2020\/03\/autismus-rodice-300x200.jpg 300w, https:\/\/www.tadytomamrad.eu\/wp-content\/uploads\/2020\/03\/autismus-rodice-768x512.jpg 768w, https:\/\/www.tadytomamrad.eu\/wp-content\/uploads\/2020\/03\/autismus-rodice-1536x1023.jpg 1536w, https:\/\/www.tadytomamrad.eu\/wp-content\/uploads\/2020\/03\/autismus-rodice-2048x1364.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"> <strong>Fyzick\u00e1 a psychick\u00e1 z\u00e1t\u011b\u017e rodin pe\u010duj\u00edc\u00edch o lidi s autismem s vysok\u00fdm stupn\u011bm z\u00e1vislosti je dle studi\u00ed z USA srovnateln\u00e1 se z\u00e1t\u011b\u017e\u00ed voj\u00e1k\u016f v prvn\u00ed bojov\u00e9 linii. <\/strong><\/p>\n\n\n\n<h2 class=\"wp-block-heading\">\u010ceho se sna\u017e\u00edme dos\u00e1hnout<\/h2>\n\n\n<p><!--EndFragment--><\/p>\n<p>Tady to m\u00e1m r\u00e1d, z.s. usilovn\u011b pracuje na \u0159e\u0161en\u00ed situace rodin, kter\u00e9 pe\u010duj\u00ed o sv\u00e9 bl\u00edzk\u00e9 s\u00a0autismem. <strong>Od roku 2010 pracuj\u00ed \u010dlenov\u00e9, p\u0159edev\u0161\u00edm rodi\u010de d\u011bt\u00ed s\u00a0autismem, dle sv\u00fdch schopnost\u00ed a mo\u017enost\u00ed na napln\u011bn\u00ed realizace projektu Nov\u00fd domov<\/strong>. Tedy vybudov\u00e1n\u00ed pobytov\u00e9 soci\u00e1ln\u00ed slu\u017eby pro dosp\u011bl\u00e9 osoby s autismem, kter\u00e1 je bude respektovat jako lidsk\u00e9 bytosti, kter\u00e9 maj\u00ed pr\u00e1vo na plnohodnotn\u00fd \u017eivot, tak jako ka\u017ed\u00fd zdrav\u00fd \u010dlov\u011bk.<\/p>\n<p>\u010clenov\u00e9 po cel\u00fdch 9 let investovali \u010das, v\u011bdomosti, schopnosti a \u00faspory k\u00a0napln\u011bn\u00ed podm\u00ednek pro registraci pobytov\u00e9 soci\u00e1ln\u00ed slu\u017eby.<\/p>\n<p>Poprv\u00e9 se poda\u0159ilo z\u00edskat p\u0159\u00edslib financov\u00e1n\u00ed provozu slu\u017eeb z\u00a0Jihomoravsk\u00e9ho kraje a finance na vybudov\u00e1n\u00ed chr\u00e1n\u011bn\u00e9ho bydlen\u00ed z\u00a0EU prost\u0159ednictv\u00edm ROP v\u00a0roce 2012. <strong>Prvn\u00ed projekt byl zma\u0159en na z\u00e1klad\u011b lidsk\u00e9 z\u00e1visti, politick\u00fdch ambic\u00ed, p\u0159edsudk\u016fm a nen\u00e1visti budouc\u00edch soused\u016f, kte\u0159\u00ed krom\u011b nesouhlasn\u00fdch petic fyzicky napadali n\u011bkter\u00e9 \u010dleny spolku.<\/strong><\/p>\n<p>Rodi\u010de se nevzdali a hledali p\u0159\u00edle\u017eitosti k napln\u011bn\u00ed vize \u2013 <strong>zajistit d\u016fstojn\u00e9 bydlen\u00ed na m\u00edru pot\u0159eb pro 6 mlad\u00fdch dosp\u011bl\u00fdch lid\u00ed s\u00a0autismem<\/strong>. V oblasti soci\u00e1ln\u00edch slu\u017eeb se od roku 2012 n\u011bkolikr\u00e1t zm\u011bnila legislativa a s t\u00edm souvisej\u00edc\u00ed po\u017eadavky na pobytov\u00e9 slu\u017eby, co\u017e vy\u017eadovalo zna\u010dn\u00e9 \u00fasil\u00ed ze strany \u010dlen\u016f k napln\u011bn\u00ed st\u00e1le nov\u00fdch pravidel a po\u017eadavk\u016f. V roce 2018 se poda\u0159ilo zajistit nezbytnou podporu Jihomoravsk\u00e9ho kraje a sou\u010dasn\u011b vhodnou v\u00fdzvou na financov\u00e1n\u00ed projektu.<\/p>\n<p>\u010clenov\u00e9 se jednozna\u010dn\u011b shodli na nemovitosti v\u00a0obci Mokr\u00e1 \u2013 Hor\u00e1kov \u2013 rodinn\u00fd d\u016fm se zahradou v\u00a0klidn\u00e9 \u010d\u00e1sti obce, bl\u00edzko lesa. <strong>Hlavn\u00ed d\u016fvod pro v\u00fdb\u011br lokality byla vst\u0159\u00edcnost soused\u016f, kte\u0159\u00ed s\u00a0rekonstrukc\u00ed a zm\u011bnou \u00fa\u010delu stavby na pobytovou slu\u017ebu pro 6 dosp\u011bl\u00fdch lid\u00ed s\u00a0autismem souhlas\u00ed.<\/strong> To znamen\u00e1, dobr\u00e9 vztahy, \u017e\u00e1dn\u00e9 petice ani napad\u00e1n\u00ed \u010dlen\u016f na ve\u0159ejnosti. Dal\u0161\u00edm d\u016fle\u017eit\u00fdm aspektem je dobr\u00e1 dostupnost pro v\u0161echny rodiny budouc\u00edch obyvatel.<\/p>\n\n\n<h2 class=\"wp-block-heading\">Nov\u00fd domov<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Pokud se poda\u0159\u00ed projekt \u00fasp\u011b\u0161n\u011b realizovat, vznikne \u00fatuln\u00fd rodinn\u00fd d\u016fm pro 6 dosp\u011bl\u00fdch osob s&nbsp;autismem.<\/strong> V&nbsp;dom\u011b bude 6&nbsp;jednol\u016f\u017ekov\u00fdch pokoj\u016f, kter\u00e9 si u\u017eivatel\u00e9 vybav\u00ed \u010d\u00e1ste\u010dn\u011b vlastn\u00edm n\u00e1bytkem a za\u0159\u00edzen\u00edm dle sv\u00fdch pot\u0159eb a vkusu. Tak jako by Va\u0161e zdrav\u00e9 d\u00edt\u011b \u0161lo bydlet na sd\u00edlen\u00fd byt s kamar\u00e1dy. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Vybaven\u00ed dom\u00e1cnost\u00ed a jednotliv\u00fdch pokoj\u016f bude respektovat specifick\u00e9 pot\u0159eby osob s autismem, d\u016fraz je kladen na odhlu\u010dn\u011bn\u00ed prostor, volbu materi\u00e1l\u016f dle specifick\u00e9ho smyslov\u00e9ho vn\u00edm\u00e1n\u00ed jednotliv\u00fdch budouc\u00edch obyvatel, strukturu prostor a&nbsp;jejich jasn\u00e9 ur\u010den\u00ed, bezpe\u010dnost\u00ed prvky<strong>.<\/strong> V\u011bt\u0161ina budouc\u00edch obyvatel je neverb\u00e1ln\u00ed a ke komunikaci pou\u017e\u00edv\u00e1 piktogramy, fotky nebo obr\u00e1zky na m\u00edru a stejn\u011b tak pot\u0159ebuj\u00ed m\u00edsta v&nbsp;dom\u011b ozna\u010dit zn\u00e1m\u00fdm zp\u016fsobem, aby se v&nbsp;prostoru orientovali. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Bude to dom\u00e1cnost na m\u00edru pot\u0159eb obyvatel, kde budou \u017e\u00edt jako lid\u00e9, d\u016fstojn\u011b a v bezpe\u010d\u00ed na dosah sv\u00fdch bl\u00edzk\u00fdch. <\/strong>  <\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>K&nbsp;\u00fasp\u011b\u0161n\u00e9mu zah\u00e1jen\u00ed realizace chyb\u00ed spolku v&nbsp;sou\u010dasn\u00e9 dob\u011b 7&nbsp;950&nbsp;000 K\u010d.<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Lid\u00e9, kte\u0159\u00ed z\u00edskali diagn\u00f3zu po roce 1994, jsou dnes mlad\u00ed dosp\u011bl\u00ed s vysokou m\u00edrou podpory, ale bez s\u00edt\u011b slu\u017eeb. V\u011bt\u0161ina registrovan\u00fdch poskytovatel\u016f soci\u00e1ln\u00edch a zdravotn\u00edch slu\u017eeb nen\u00ed schopna se o lidi s&nbsp;autismem postarat. Rodin\u00e1m tak nezb\u00fdv\u00e1 ne\u017e se o sv\u00e9 bl\u00edzk\u00e9 s autismem pln\u011b postarat sami. Pomoci jim mohou pouze omezen\u00e9 vzd\u011bl\u00e1vac\u00ed a ter\u00e9nn\u00ed slu\u017eby,&hellip;<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-45","page","type-page","status-publish","hentry","description-off"],"_links":{"self":[{"href":"https:\/\/www.tadytomamrad.eu\/index.php?rest_route=\/wp\/v2\/pages\/45","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.tadytomamrad.eu\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.tadytomamrad.eu\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.tadytomamrad.eu\/index.php?rest_route=\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/www.tadytomamrad.eu\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=45"}],"version-history":[{"count":19,"href":"https:\/\/www.tadytomamrad.eu\/index.php?rest_route=\/wp\/v2\/pages\/45\/revisions"}],"predecessor-version":[{"id":134,"href":"https:\/\/www.tadytomamrad.eu\/index.php?rest_route=\/wp\/v2\/pages\/45\/revisions\/134"}],"wp:attachment":[{"href":"https:\/\/www.tadytomamrad.eu\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=45"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}